Pallister-Killian Syndrome is a relatively rare syndrome. As a result, very little information and support has been available to families in the past. Most medical professionals have never heard of PKS.
PKSFA has been established to provide help and support to individuals diagnosed with PKS and their families as well as raising awareness and providing information to the medical community.
Vision and Mission Statement
To maximise the quality of life of individuals who are diagnosed with Pallister-Killian Syndrome by
- Providing equipment and services for those with PKS;
- Supporting parents and family;
- Promoting research into PKS;
- Raising community awareness of PKS.